Fibromyalgia kills me tonight

Living to help other disabled people, and people in need, Change the sign!! And Earth

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10153076_10152365449751095_1537284422_nI opened this new ‘ShaunyNews’ blog because I was tired of talking about pain in my old blog ‘Praying for one day’ I immerse myself in news and sport to deflect my thinking from pain, tonight I am losing badly, I just hurt and it’s getting stronger and sorer. PLEASE do not say “I am sorry to hear this” or any of that, I am in my bedroom alone venting as I don’t want to bother my partner of my two sons with this crap

Fibromyalgia is a disability that tells lies. People look healthy but on the inside they are damaged. With Fibromyalgia there are no dates, there are no “You will die at this time” There is just pain and an existence that just takes and takes what you have, what you love to do, what you like and who you love. I have no lost anyone I…

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By MentalHealthProfessional_CombatingFibromyalgia Posted in Fibro

Schizophrenia and then Alzheimer’s

Jill's Experiences with Mental Health , Stigma, Alzheimer's Disease, Grief & Grieving & serenade2seniors

Although schizophrenia and Alzheimer’s are very different, the

While living through schizophrenia and Alzheimer’s, I had to learn that it was not what happened to me that counted, but, how I dealt with each one of them.

i learned that my anger at schizophrenia and Alzheimer’s were destroying me, so, i learned to do something about it. There were times when I felt as if my heart had turned to stone and it was a long time before I gained the ability to laugh, to feel even the tiniest emotion or to be open to loving again.

I had to learn that although pain is inevitable, extended suffering is optional. As there was no way that I could change the  cards that my family had been dealt, I had to learn to change the way I played each hand.

All this took a long time, but eventually, I  learned to…

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By MentalHealthProfessional_CombatingFibromyalgia Posted in Fibro

When no-one else’s standards matter but mine…

It’s fair to say that I’ve had my fair share of frustrations working in mental health and in the Third Sector over the years. I’m not particularly keen on the way the Third Sector is structured, the frustrations surrounding funding, virtually no priority in training and personal development of staff because when funds are tight it’s one of the first things to go.

I believe that the structure, legal entity and vision of a Social Enterprise fit today’s modern world much better. They can have a much better balance of being able to do good for people who need it, while being able to sell services and goods and the money being invested back into the Enterprise. It also creates a much fairer balance for staff too, knowing that they don’t need to solely rely on applying for funding, fundraising and more regular ups and downs of uncertainty.

Latterly as I’ve been studying for my CIPD in Learning and Development it’s opened my eyes even further on the adage that charities’ internal structures, processes and procedures often do not conform to my or CIPD’s standards and best practice. I’ve been fortunate enough to have been able to influence and change many things only for them to be un-done due to internal changes.

So, as I’ve been working from home for myself (with my remaining annual leave) before finally leaving the Third Sector behind in a couple of weeks, I have to admit feeling a huge sigh of relief that I can leave all that behind and move on. I have found the days spent at home relaxing and working to my own standards knowing that they are exactly how I want them to be. I feel less stressed and much more focused. I finally have my business well and truly off the ground and I am 100% in control.

What’s ironic is that my customers will be from the Third Sector, but that’s all they will be, customers. I will continue to work with the very people I have always enjoyed working with but without all the baggage.

Exciting times……..