There was a time…. #fibromyalgia

There was a time when I could give my all online, as a very early adopter of technology and the internet I lived and breathed it. Now all I do is work all the hours God sends for nothing but exhaustion, frustration, isolation, and lack of appreciation. Why do we as a country have these stupid long hours, crap pay, rubbish pensions, and no such thing as retirement anymore.

I dunno, I give up. Most of these new health initiatives are just talk, show off and no action. Paper documents come out, research papers, fancy expensive meetings and wasted money.

We have all this technology and we’re no further forward. 

Advertisements

I never tire coming to the Highlands twice a year. Neither of us own passports and haven’t done for over 20 years.  In fact my husband has never had a passport so isn’t even bothered.  We’ve never once wished we weren’t here. The more recent problems of caravan holidays have been overcome by taking the right comfort padding! Unfortunately my husband has had to give up a lot, but I too miss what we used to do.

We have a lovely tent with all the additional extras.

We have a bike each that we used to take for    mountain biking, sometimes covering as much as 30 miles in one day.  Just before I became unable to take these with us on holiday we had bought a new bike carrier with number plate and had a tow bar fitted to the car.

We’ve done many long mountain walks in breathtaking Scottish scenery.

Long drives have become shorter as a tire more easily. These photos instill many happy memories and there so many people who develop fibromyalgia early in their lives who won’t have had these chances or opportunities.

The day we arrived it was a beautiful evening; very classic of the Highlands. Most of the stuff we bring is pre-packed, and as we always come to the same place we unpack like the same jigsaw done every day. Everything has its place.

The bed is always my worst nightmare and true to form I woke up on Sunday having pulled a muscle in my shoulder and neck. These areas are bad enough without making them worse so I was increasingly restricted for several days. I find driving quite difficult but as I have a good discipline of using all mirrors I’m generally OK.  There are exceptions of course and this was one of them!

Never mind, it did pass. Poor sleep remained throughout the rest of the holiday, cramp in the legs, burning in my heals, restless legs and being unable to find a position that brought any decent sleep. The bonus is though that it didn’t matter because the days were our own.

Going back to work is always hard, but as there is no difference in wellbeing on any 365 day there is nothing to gain by being off.

So, what does this holiday and all the other holidays past and present do? It gives me quality time with my husband, laughs with our budgie, the most amazing wildlife, catching up with lots of books and films and most of all peace and quiet.

I’d swap this life for anything, it’s so good for you, the air is like nothing on earth and makes coping with fibromyalgia easier.

Maybe one day…..

#Fibromyalgia Captured Pictures

It’s been a busy time since I last posted.  I’ve a lot going on at work and as I’m going away to the Highlands to switch off for a fortnight, it’s even busier finishing everything I need to do before I go away.   I always panic that I’ve forgotten something to do.  Those with Fibro will understand that memory is a real problem and I have continual lists on the go, memory prompts, and notes all over the place.  But what I really wanted to do with this post is display in pictures what my Fibro life is like.   So here it is.

TMJ/TMD & Sleep (#fibromyalgia)

 

I actually did have a better sleep last night, with ear plugs that stayed in and several wakes up with pain instead of many.  Some people say that with Fibromyalgia their pain is reduced during the night.  I find it makes little difference and can have very painful nights.

I bought a mattress topper a while ago, which has helped and a sleep body pillow.  I’ve been through about 5 different head pillows and go from chucking it on the floor to using it for a a few hours before chucking it back on the floor again!.

And….then there’s the issue of TMD/TMJ, something I know many will identify with.  This started for me during my running year in 2007, just before any other problem started.   At first I had no idea why I was waking up with a sore jaw and headaches.  A regular visit to the dentist revealed it when he pressed on the upper muscles in my mouth.  Ahhhhh.

At first I got by with a spongy rubbery tooth-guard after cracking a molar and I persevered with this for about 2 years.  Then a visit to my Osteopath revealed a new type of product called an NTI Splint.  After finding a dentist that specialised in these,  I decided to go ahead with it.  It wasn’t cheap, so I paid it up over a few months and this is what it looks like.

It’s supposed to last about a year, but 6 months in and I’d already calved a significant groove in it.  So I went back for some modifications.  The reduction in jaw pain is incredible, and the headaches I do get I know are not related to TMD.  It’s now becoming apparent I need a replacement, but it’ll have to wait until I get some extra cash together.  This is going to have to be a regular expense for me, but a very worthwhile one.  I just hope as it becomes a norm for TMD the price comes down.

I just wanted to thank those who have started to engage with me on wordpress.  It’s something I had been considering doing for a while, but I do so much other stuff online I wondered if I would ever find the time…. and then I found I could post from a variety of devices.  So that’s made things a little easier when I can’t be bothered to put my laptop on.