Fibromyalgia & Sleep (#fibromyalgia)

I was going to write something else this evening, but then I was going to write something yesterday too. That’s often the case with fibro, everything is unpredictable.  I was browsing my usual inbox of health notifications at work and an aptly titled “It’s a fact – lack of sleep affects your work rate” appeared.   Now it’s not new to us fibro lot that poor sleep is the bane of our lives. I never for the life of me appreciated how much lack of sleep affects so many parts of your body. If you think it’s just your brain that gets a raw deal, think again.

After a poor nights sleep you feel pain multiple times more extreme, your eyes start burning before it’s even midday. Headaches pound your temples and the back of your eyes. Fibro fog descends so low that it reaches your ankles. With only your feet for guidance you’re walking on ice as a learner skater where your balance is tested to its limits. Somehow you stay upright, but by the time an hour has passed, every muscle in your body aches. Then lightening strikes from the sky and slices through your neck and you feel your eye has shattered, but it’s still there trying to focus on fresh air.

By the end of the day as all these processes have occurred multiple times along with all the little ones that I take for granted. It’s evening, it’s after work and only a few hours to chill before bed. You’re already starting to fall asleep… ironic really, because you long and die for sleep, but it’s impossible.  Even if you sleep on and off, restless legs will bug you all night. The urgency to constantly moves means you could run a marathon in the night.

Despite all this, I refuse to let this stop me working effectively and efficiently. I’m sure there are jobs I would not be suited to due to how fibro affects me but I will not be dedicated to by a condition I hate. I think that is partly what drives me, but I have had to make sacrifices. I start at 10am and finish at 6pm. I split my lunch break in to several smaller chunks. I use Access to Work for travel so that my pain and fatigue is reduced.

So, no, my work rate is not affected, but only because I do things to minimise it. Whether this is sustainable is another thing entirely…

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